I was diagnosed with Rhumatoid Arthritis when I was 5 years old. I couldn't do any high impact sport during my childhood. I was the kid forced to go to the library during physical education classes. At least I became good enough at swimming! I did a bit of competing, but because I was not a top performer in the club, I was kinda left aside by the coaches that were putting more energy in promising swimmers. I lost some interest in swimming because of that. I didn't like the "compete to win" mentality, I was mostly the "do it as best as you can" kind, especially in my condition!
At 14, my doctor decided to stop completely my medication (not good), it seemed like I was back to normal! I went nuts. I tried every sport I could and was really enjoying life and appreciating each moment. You heard that before, but yes, you really only enjoy things fully when you lost them. The thing is, having been diagnosed so young, I did not know at that time what I was missing. I was therefore discovering life in a new light.
The blast came to me when I was 17. After feeling pain I thought was due to a twisted ankle, I had to go to the doctor and they told me that it was back! But this time, it really hit hard. You're a teen, everybody around you is at the best they've ever been, you're at your worst. I've tasted what it felt to be in good shape. It made it feel much worse. Everything went quickly. Most of the time, I had to use crutches. My ankles, toes, knees, elbows, fingers, wrists and neck were affected. And no medication would help, not even what used to work before.
At 20, there were days I couldn't get up from my bed, both my legs wouldn't support me. My boyfriend at that time had to carry me to the bathroom. Simple buttons or zippers were a nightmare for me. I was crying from pain and was totally depressed. I was also not taking good care of myself, it was an endless cycle. You move less because it hurts like hell, and it gets worse because you're not moving enough. When my doctor told me that if it continued like that, I would be stuck in a wheelchair before I turned 25, I got angry. I just decided this wouldn't happen. I got a new doctor (I thank the old one today for shaking me out of my situation). I went on cortisone for a while until I heard about biologics (expensive!!! but not much for such a miracle).
Since I was 22, my situation has just been improving, and I became more and more active. Now, at 26, I am living a perfectly normal life (except that I can't run), and nobody would guess I've been through that.
I've always admired triathletes and wished I could someday participate in such an event. I also like the community feel, and how a lot of people are competing for the personnal accomplishment, rather than the glory. Until last year, there were triathlons and duathlons, but nothing that would combine swimming and biking, mostly the only two sports I could hope one day to put together for multisports, without endangering my joints. And yes, last year, some US triathlons decided to introduce Aquabike! I learned about it only recently, and was totally delighted! Then Canada got in this year, and it is getting popular. There are a lot of people out there that can't do high impact sports, because of injuries or diseases.
So, with that said, I'm very enthusiastic about having the possibility to show everybody (especially people that have had a similar experience) that I've been through all this and today it is possible for me to get out there and enjoy the chance I have to be able to do this stuff!
Anyway, wish you all a good day!
Sorry for the long story, I tried to make it as short as possible! :-)
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2 comments:
I really admire you for taking on your life and taking on your illness. Most people lay down and allow their disease to defeat them... the great one's defeat their disease. Rock on Caroline!
~ef
Thanks E. I have been laying down and letting myself get worse in the past, but I had to do something about it! :)
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